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Pain, pain and more pain 😭

It’s hard to get an appointment with rheumatologists since they need a referral from another doctor. Well, I went to one clinic and specifically told them that I need a referral for a specialist (rheumatologist) and they said ok. So I went in...

My journey so far

They said they needed to do bloodwork before they can release a letter and to which I had to pay, of course. It cost me almost $400. After that, they said they would call me with results. A week later I got no call. I decided to call them. The office manager told me that my bloodwork was negative so they can't give me a referral. I said that I told them that from the get-go, that was why I went there, and did it, and paid what they asked, and now they won’t give me the referral?? And I know that there is really no definitive test for PsA or RA, but you can also be seronegative.

Pain and other symptoms

Up to now, I’m suffering from joint pain and stiffness every day, brain fog, and new swelling on my left shoulder joint. My eyes are so dry that puncta plugs had to be put in. I cry almost every day from the pain and being excessively tired. 😭 It’s hard to sleep when you don’t know how to position yourself in the bed and you so badly want to sleep, but you can’t. I work every day and still try to cook meals. I just want to be ok. I need meds for this so bad.

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