MY Daily struggle

Hi, I've had psoriatic arthritis for 45 years. I'm 53 now. I started with 80% body/scalp psoriasis at age 9. Then as the years went on and into my late teens and early 20's, the pain started. By my late 20's every part of my body felt like a car crash. I struggled for years and at the age of 40, I got my diagnosis after bloods and MRI.

I've now been on a biologic for 13 years. Daily life now is more of a struggle with lack of sleep and major fatigue. And if I push myself for 1 full day, I suffer for a good few days after. But I feel since being on my biologic, life has been much better. No, I'm not pain free, but I can usually balance things a little better. The only thing I will say is it really is the disease that keeps on giving as I have small vessel disease etc. amongst other issues that I personally think all branch off the disease.

The hardest part of this disease is not being able to plan ahead, as every day can change so fast without any warning. A huge trigger for me is lack of sleep. I only sleep about 4 or 5 hours a night. Also stress can wipe me out and I seem to take infection after infection, but I will not let this disease win. We have to just keep going xxxxx