Rug Pulled Out From Under Me

It has been a long time since I’ve written a post, I feel I’m in constant turmoil and life keeps throwing more at me. I will forewarn you that this is not a feel good post, you may already be feeling down to scroll to another.

I was diagnosed with fibromyalgia and osteoarthritis many years ago. I always knew there was more, I was diagnosed with rheumatoid arthritis (RA) over 5 years ago and officially diagnosed with psoriatic arthritis 2 years ago. Now over the past year, my skin rashes have been diagnosed as psoriasis.

Experiencing loss with psoriatic arthritis

My health has declined significantly over the past 2 years, within the past year, I’ve lost my home (I live with my daughter and her boyfriend in a small 2 bedroom apt) blessed she took me in. I’ve lost my job, inability to do what I was doing. Had to give up my car, due to high payments. Lost most of my ability to walk. I’m having a MRI of my spine next week do to nerve and or muscle issues from the advisement of my neurologist. Now on unemployment looking to work from home, so far nothing has panned out.

I finally decided to move forward and speak to a therapist, starting in a couple weeks. Not sure if this was a wise decision, I thought it was. After reading the intake therapist’s report, we had a zoom call, she made me sound horrific. I will wait though and see how it goes with the therapist.

I have started my possibly 7th biologic, it’s been 2 months and I know patience is important. At the same time, trying to taper down on my prednisone, which is bringing me to my knees.

Struggling to pull myself back up

I keep telling myself that this next month or this coming year things will get better... My life’s motto has been "What kicks you down will make you stronger." I no longer live by that motto, nor do I have a new one yet. Possibly soon.

I’m sure you’ve all felt this way too, but every time I start to think something good will happen, the rug gets pulled out from under me and I’m struggling to pull myself back up.

Do you have a story about living with psoriatic arthritis to share too?

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