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Trying to Get Final Diagnosis

The specialist I’m seeing has mentioned that he feels I’ve got this painful autoimmune disease.

Experiencing PsA symptoms

I’ve been researching it and I’m seeing all the roads leading to it. The stiffness in the mornings, swelling of my joints, pain in my feet, weird rashes on my hands and wrists, and exhaustion.

On top of that, I’ve developed Type 2 Diabetes and had to start on insulin twice a day. I’m in pain all the time and I feel that my body is falling apart.

Waiting for official PsA diagnosis

I’ve yet to be given a final diagnosis but it all leads to psoriatic arthritis. I’ve had scans-a-million and blood tests but nothing is final yet.

Out of desperation, I’ve decided to join this site and hope for more information and support. One more thing I would like to mention is there are very few Rheumatologists near me. I travel 2-3 hours now to see someone who’s part of a teaching hospital – very frustrating.

Have a story to share? You can submit your PsA story here!

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Comments

  • Leanne Donaldson
    4 days ago

    I am so sorry that you are dealing with so much at once @johnhannah1960 You must be feeling very overwhelmed and understandably frustrated. But you are in the right place. We have such a supportive community here and quite a few people who also manage a range of co-morbidities including Type 2 Diabetes. In my experience, finding a good rheumatologist makes all the difference, it is definitely saddening that they are in such short supply. 2-3 hours is quite a long way to go for a doctor appointment but I know many people that drive hours, passing some closer by rheumys so they can see their preferred one. We hear you and are here for anything you may need! -Leanne, (Psoriatic-Arthritis.com Team Member)

  • Tamkatt
    4 days ago

    Johnhannah1960,
    I also am insulin dependent type 2 with PSA, and probably the most important thing you can do, find rheumatologist and endocrinologist that you feel listen to you and that you can work with, THEN , make sure they will work together for and with you! I’m so very lucky that not only are mine in same clinic but they share a patient lobby so I can see them one followed by other. They do share my information and their observations on how I’m doing. I truly feel blessed and so very fortunate in finding them. I’ve had good and bad doctors in these areas so don’t hesitate to speak up if your needs are not being met. Good luck in your journey.

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