kwtawalker
"I am just going to say: this is such a crappy site. While I signed up for the supposed PsA foundation, there is more information on other diseases available than PsA. In less than 5 years, I have lost so much mobility, have seen a number of specialist, and have been on a ridiculous amount of medication. I am now on infusion, I rejected Remicade, I have what I think is nerve damage in one foot and leg due to breakthrough while on Enbrel. I just would like to talk with others dealing with PsA, but it is hard to find anything that is specific to this disease. "
, I appreciate your feedback, sorry to hear that you haven't been able to find the information you've been looking for. Please don't hesitate to reach out to us if you're ever looking for some in particular and I'm happy to assist. You can also start a forum discussion: https://psoriatic-arthritis.com/forums to get some more visibility and connect with others also living with PsA. How are you doing on the infusion now? The nerve damage must be quite painful and worrisome. Do you have an appointment to see for sure if it's nerve damage? Thinking of you, Minel (Team Member)