kwtawalker
"I am just going to say: this is such a crappy site. While I signed up for the supposed PsA foundation, there is more information on other diseases available than PsA. In less than 5 years, I have lost so much mobility, have seen a number of specialist, and have been on a ridiculous amount of medication. I am now on infusion, I rejected Remicade, I have what I think is nerve damage in one foot and leg due to breakthrough while on Enbrel. I just would like to talk with others dealing with PsA, but it is hard to find anything that is specific to this disease. "
, I appreciate your feedback, sorry to hear that you haven't been able to find the information you've been looking for. Please don't hesitate to reach out to us if you're ever looking for some in particular and I'm happy to assist. You can also start a forum discussion: https://psoriatic-arthritis.com/forums to get some more visibility and connect with others also living with PsA. How are you doing on the infusion now? The nerve damage must be quite painful and worrisome. Do you have an appointment to see for sure if it's nerve damage? Thinking of you, Minel (Team Member)
"I am posting for the first time here, and I feel a little lost. I am seeking individuals who have experienced some of my symptoms: I developed psoriasis approx. 20 years ago after going off one yearly allergy shot...steroid. After many misdiagnosis by MD, I was sent to a dermatologist who diagnosed not only psoriasis, but the fact that I had strep throat, which is apparently a trigger. In the last 20 years, I have been diagnosed with plantar fasciitis and SI Joint Dysfunction. These conditions have been chronic for many years despite numerous podiatry/chiropractic treatments. Fast forward, my psoriasis has been 98 percent in remission for approx. 7 years, but 3 years ago, it became apparent I had psoriatic arthritis. I resisted treatment for some time as I have heard side effects of medications. In the last 2 years, I finally started seeing a rheumatologist. I have been on numerous Dmards, but my body did not tolerate them well...skin thinned so I would bleed from the slightest scrape, hair falling out despite Leucovor. I was then put on Enbrel, and I suddenly started experiencing severe edema in ankles and calves. I am now on Humira... I experience edema, brain fog, hot feet that wake me up several times a night, blurry vision, fatigue, hair breaking and thinning, nail ridges. After many tests, I was started on Levothyroxin as I have borderline hypothyroidism. I still have the same symptoms. I have never had these issues prior to medications. No one can explain the severe edema. I am a very small woman...104 lbs, 5’4. I can literally gain 6 or more lbs in water retention., "
Hi kwtawalker - I'm so sorry you're going through this - please know you're in the right place! I definitely recommend you check out our treatment forum board - https://psoriatic-arthritis.com/forum/treatment-issues/. We've got quite a few threads on Humira and other types of medications! Hang in there!
"Tired"