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jax53

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  1. "I am very low, awoke to pain in both my ankles, turned over after a fashion then tried to settle, no good had pain in my knee, am so fed up, it is not my idea of a life."

    1. @Jax53, I'm sorry you had a fitful night (I'm sure it's not the first time!). Do you find that heat helps the pain? I know we had a community recommendation on here for heated mattress pads to help achy joints.
      Thinking about you today,
      -Victoria, Community Moderator

  2. "I am so stiff this morning, I have been hit with the reality that my body is worsening, Red areas on my ankle bones, pain in hip knee spine, hands feet, not forgetting knees, I feel like I have been put through a wringer, I have huge nodules appearing, my nails are pitting, My toenails have red lines going down them, Am I changing into a Zombie,[ I need to know because I hate zombies}. I am lost, My way is not clear, I want to go to the shops by myself, look around, but get no farther than my gate. or just beyond. I have friends but I am lonely, and having suffered Multiple Deaths in my family for the last 2 years, makes me wonder who is next, I was not the Eldest, I had 4 family members who were the eldest, and now I am the eldest, I am not sure I like that position, I want a path to follow, where things go right not turned upside down. I say my prayers at night and sometimes forget a person so I recite it all again so I don't miss anyone out. My life makes no sense to me now, I wondered how the hell this happened."

    1. Just popping by to say you're in my thoughts today, @jax53. Your line about wanting the path to go right, not upside down, really speaks a lot of truth to me. I'm sorry you've had so much loss recently, I'm sure that must be a big weight on your heart. Reaching through the screen to give you a hug.
      -Victoria, Community Moderator

    2. Thanks, Vicki, you are a ray of hope, I have no direction, no pointer, Psoriasis and its counterpart Arthritis, is a devil disease, born from goodness knows what, and has no ending,

  3. "I have now found my nails are pitting, I have been in a flare-up since I had hand surgery in March 2018, it shows no sign of easing, just worsening day by day, It also has shown in my recent blood test that I have abnormal hormone levels, {what else can go wrong}, I am a diabetic and am having hypos even without taking any medications, I think I drastically need help."

  4. "I am not too well, I have Osteoarthritis, And psoriatic Arthritis, Plus Pustular Psoriasis, on both hands and feet,It feels like my body is out of control, every step I take either my knees hurt and fail, or my feet hurt, I have had this for over 20 years, I have come full circle, No-body tells you anything, No-body listens, Does any body care any more? I was told I have many Autoimmune Problems, I just want a normal life? I am approaching my 65th Birthday, and not much has changed, Doctors either don't listen, I turned to Research, in the hopes that someday, when another person, has been diagnosed, And have gone through or is going through all the abuse I suffered, I want to help in some way, and research is the way to go. It may not work, it may prove to be the best thing since sliced bread, who knows?"

    1. You are in the right place, Jax53. We care. I definitely recommend you check out our forum discussion boards - the members are incredibly kind and supportive. You can also check out the treatment board here: https://psoriatic-arthritis.com/forum/treatment-issues/