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Importance of Online and In-Person Support for Psoriatic Arthritis

Living with psoriatic arthritis (PsA) has been a journey, and one thing that made a huge difference was the support I found from different communities.

When I was diagnosed with PsA, I felt isolated and was told I was lazy many times. However, finding online support groups and individuals has changed my experience by providing a sense of belonging and encouragement.

Finding strength and support through online communities

When I was diagnosed, I felt that my world was spinning. I had always felt that the pain and fatigue I was having was too much to endure.

It was hard to imagine this new reality. I knew I had to find a way to face it both physically and emotionally.

I went online to find answers and support. Online communities were my first lifeline.

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I joined several support groups and specific forums for people with PsA. These platforms quickly became invaluable for information and comfort. Reading other people's stories and realizing that I wasn't alone in this fight was a great relief.

Gaining insight and connection

Many members shared their experiences, treatment options, and strategies, which have greatly helped me manage my symptoms. One of the best parts of this online community is being connected to people everywhere. They shared information about new medicines, alternative therapies, and lifestyles that have not been thought about.

Anonymous online interactions also made it easier to express my fears and frustrations without feeling judged. This was so important to my mental health because it gave me a place to vent and seek advice. Even though online support was great, I soon realized that I needed more face-to-face interaction.

This is how I found our community. Soon, I got invited to a conference and eventually was asked to write articles and moderate. This helped me find my voice and become a patient advocate.

Over these past few years I have been working with Health Union, I have met other people who have experienced similar problems as I have. We have been instantly bonding because we have all understood each other. We talk about our everyday struggles, celebrate small wins, and encourage each other.

This community reminded me that I was not alone in the fight against PsA. Personal support has been a unique advantage. You can see and interact with people who understand what it feels like to be part of a strong community.  They also organized social events.

My family and friends have also played a huge role in supporting me. Their education on this illness has been crucial to helping them understand my limitations and needs. They supported me in various ways, such as coming to doctor's appointments with me or helping with my work on hard days, which made a significant difference.

In general, public support was the cornerstone of my journey with PsA. The combination of online support and personal offered awareness and resources of different networks.

These support groups not only helped me to manage my physical symptoms, but they were also very important to my spiritual and emotional well-being. If you live with PsA, I invite you to look for any support systems.

We are all in this together.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Psoriatic-Arthritis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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