The One Psoriatic Arthritis Topic I Avoid Like the Plague
Last updated: July 2023
The impact of psoriatic arthritis is as unique as the person who lives with it. Everyone's experience is different which is why placing stigma, judgement or expectations on an individual living with PsA can be particularly triggering, sensitive or painful.
Maybe you're only aware of this when you live with the condition itself. It's why raising awareness and sharing experiences is so important. In my years of living with this condition, I've learned what it's important to share and what's just as important to avoid.
PsA treatment is such a complex topic!
After witnessing decades of people attacking each other's treatment choices, I have grown frustrated. It frustrates me to see individuals believing that their way is the only way, and it saddens me that not everyone has equal access to a wide range of treatment options.
Things have come a long way regarding patients' choices in treating psoriatic arthritis (PsA), especially since I was first diagnosed. However, I find myself avoiding discussions about my own approach to treating PsA like the plague.
One size does not fit all
Psoriatic arthritis is a complex condition that manifests differently in each individual. One person may have one form, while another suffers from all five. Even if they have the same form, they may differ in stages. And not everyone progresses at the same speed. What works for one person may not work for another.
It is essential to recognize that there is no one-size-fits-all solution when it comes to treating PsA. That is why a personalized approach is crucial to address each patient's unique needs and experiences. Acknowledging this fact can encourage a more empathetic and understanding dialogue surrounding PsA treatment.
Allergies and sensitivities
One aspect often overlooked in discussions about PsA treatment is the presence of allergies and sensitivities. Some individuals may have adverse reactions or allergies to specific medications or therapies used for PsA. Respecting and acknowledging these allergies is crucial, as they significantly impact treatment choices and outcomes.
No one should be coerced into pursuing a treatment option that puts their health at risk. By considering allergies and sensitivities, we create an environment that values the well-being and safety of all individuals with PsA.
The importance of personalization
Each person's experience with PsA is unique, and therefore, treatment plans should be tailored to address their specific needs. Healthcare providers must allow patients to participate in decision-making and actively contribute to their treatment plans.
By embracing a personalized approach, we increase the chances of finding a treatment that suits the individual, leading to better outcomes and improved quality of life. And if that means an all-pharmaceutical, all-natural, alternative, or mixed-bag management approach, so be it!
Shifting the narrative
A "one-size-fits-all" mentality hurts everyone. It invalidates the experiences and choices of individuals who have found relief through alternative methods. Instead of engaging in debates about which treatment is superior, it is crucial to shift the narrative to one that promotes inclusivity and respect for diverse treatment approaches.
We should celebrate the variety of options available and recognize that what works for one person may not work for another. The medications that I have suffered terribly from don't make them wrong. If they help others, they are just bad for me.
I feel that people with PsA should be encouraged to take an active role in their treatment decisions and feel empowered to explore different options. This empowerment can come from seeking second opinions, actively participating in support groups or online communities, and finding a healthcare team that respects their choices.
Empowering patients enables them to make informed decisions and take ownership of their treatment plans. Not to mention that patients who take ownership of their treatment plans are more apt to follow them better than someone who has no say.
Treating psoriatic arthritis is a deeply personal journey. The belief that one treatment option is superior to all others disregards the uniqueness of each individual's experience and limits the opportunities for exploring alternative approaches that may provide relief.
By embracing a personalized approach, considering allergies and sensitivities, and shifting the narrative to inclusivity and empowerment, we can create an environment that fosters understanding, respect, and support for everyone.
This or That
Have you tried integrating the anti-inflammatory diet into your routine?
Do you have any questions about PsA?