Hello, Just diagnosed and has a question regarding m Symptoms
Hi my name is Russ and Im new to the forum, recently diagnosed with PSA and feel/am told my symptoms not always the norm hence reaching out for advise. The short of it LOL: Labs show very little other than a + ANA, no inflammation all else in check, do have PSA toe nail issue, stiff ness in the hands and feet, minor in the legs. Last March thought I was coming down with a bad flu, HARD Internal heat, chills, sometimes sweats, NEVER any fever, but wiped out flu like 24/7 never any remission? Almost a year later ALL the same. ONLY thing that has helped were steroids, Humira currently with no luck. Anyone else with the Major symptoms of Exhaustion, Fatigue and Flu LIKE 24/7? Thank you for your time!
Hi
. I have not shared your experience, but I wanted to step in here to formally welcome you to the PsA community. I am glad you found us. You will find lots of super supportive people here and some great resources. Please feel free to PM me or any other moderator if ever you need help finding anything. I hope you get some valuable input from the community. What has your doctor said about your symptoms? All of your symptoms are commonly experienced in people with PsA, but maybe not for such uninterrupted periods of time. How long have you been on Humira? It can take up to four months for PsA medications to become fully effective, but if you have been on it that long with no results, it might be time to try something else. Unfortunately, matching patients with effective medications is a guessing game. Everyone responds to PsA medications differently and what helps one person might not help another. You just have to keep trying until you find one that helps. I hope you get some answers and some relief. Thinking of you. - Lori (Team Member) Thank you so for your response. Sadly everyday the same ONLY month of relief was in Dec while on Medrol (steroid) which speaks volumes for it being AI related. ONLY on the Humira for 2 months now hence yes may be another month or so until results hence fingers crossed for. Doc says while not a typical he has heard of the intense fever type feel, Hot and cold all the time etc. I may just have it really bad 🙁 BUT over the last year at the very least my mind a bit more at ease knowing some Very bad things its NOT, and finding ways to cope daily as just SO sick every day. Thank you again for this board and your time.
Hi
. If you believe the hot and cold sensations might be unrelated to PsA, I hope you keep advocating for yourself until you get some answers, even if that means finding another doctor for a second opinion. Many members here have reported fevers or excess sweating, but usually only for brief periods of time. Sometimes, instinct is your best guide. Have you ever seen a neurologist to be sure some of your symptoms are not neurological in nature? I hope Humira begins to help soon. Gentle hugs. - Lori (Team Member)
Yes LOL take my temp daily and nothing, which is a good thing 😀 Thank you so for the input!
