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Two words

  • By Rebecca Keymaster

    If you could only pick one word to describe psoriatic arthritis, what would it be?

    AND

    If you could only pick one word to describe YOURSELF, what would it be?

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    • By Rebecca Keymaster

      It sounds like you’re really going through it @iamschmarte ….I’m so sorry to hear it. The pain/depression cycle is a vicious one, too….what’s going on these days with treatment for you?

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    • By imschmarte

      Hi Rebecca! I am not usually a whiny, depressed person! I am just coming off the worst flare I think I have ever had, guess that is my excuse. I am usually a happy person, despite all these diseases. I always figure, no matter how bad you think you have it, there is always someone worse! As far as treatments, all I am on nowadays is methotrexate, anti-inflamitories, (I know that is spelled wrong, but can’t think!), and a drug for my Sjogrens. I was on Remicaide for years, and I was doing great. Then insurance decided it was too expensive, and now I can’t get it. Thanks for commenting! I appreciate it! You seem like a happy person, how do you do it?

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    • By Rebecca Keymaster

      Hardly @iamschmarte! Although, thanks for the compliment 🙂 I’m most definitely not always happy! And – full disclosure – I don’t have PsA (although I do have another chronic pain condition that includes having severe arthritis of the spine). Anyway, I kind of feel like part of it is that you just get used to being in pain? Bit by bit, you gradually forget what life was like when you didn’t have to constantly think first before doing something (whether I am physically able to complete it). I did recently start a new nerve medication, which worked wonders. Unfortunately, my insurance now won’t cover it. But it sure was nice while it lasted!

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  • By imschmarte

    Ah Rebecca! The wonders of modern medicine that are so expensive no one can have them! LOL Was just wondering, do you have AS? (anklyosing spondylitis) I also have that, and my spine is a mess. Going this week for cortizone shots, hopefully they work, or a very large surgery is in my future! UGH! But I do agree with your statement about getting used to pain. You most definitely do!! What used to be a 10 is now probably just a 5. So sad that we have to get so used to pain, that it no longer affects us like it used to. I don’t know what drug you were on, but I am on gabapentin, it is a generic neurotin or lyrica, I forget. But it does help the nerve pain a little bit. Might want to ask your rheumatologist about it! Hang in there girlie, hoping for better days ahead!! :<)

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