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Think it's PsA but who knows.

  • By nikki-lee

    Last June, I got sick. Real sick. I had fever and chills, night sweats like no other. Changing my shirt 2 to 3 times a night. I got clinically diagnosed with Lymes disease, but I never tested positive. I was sick for a month missing about 2 days a week of work, until one day I was better. Around December, I started feeling pain in my left hip area (iliac crest), it got worse everyday, until the end of February when I could barely walk. The pain radiated in my lower back as well as my SI joint. I wasnt able to sit or lay down at all for three months. When I did I had to change positions every few seconds. In the meanwhile, I was falling quite a bit (about 4 times in a month), confusion and memory loss. Granted my memory has never been good, but this was on another level. I started the process for MS and they ruled that out. More blood test and more specialist……. nothing. I had to go on FMLA and eventually quit this past June. I am so tired all day everyday, loss of appetite, sun sensitivity to my eyes, I feel some days like I am beat with a bat, nausea, extreme weakness. I have seen every kind of specialist for the pain and every time I get the same answer. I don’t know. I went to a rheumatologist in June and she mentioned I might have PsA, since I have psoriasis. So i go for my 3rd mri, this time of my hip. The other ones were of my brain and lumber, even though the only pain was my hip area. The mri shows alot, edema-marrow on my SI joint and posterior illiac, enthesial edema to my butt from my illiac. Since the mri, my ribs feel like the muscles are being ripped off of them. I am in so much pain. I go back to my rheumatologist today and she says, I dont know. Whatttt!!!!!!! Why?!?!?!? I am at the lowest I have been in months. It has effected my entire life. I cant work, cant shop, some days I cant more than 2 miles, if I make dinner for my family I’m so exhausted I cant eat. I dont know what to do or where to go at this point. Feel like I’m going crazy.

  • By CathyD Moderator

    Goodness me, @nikki-lee, you have been having a really rough time of it 🙁 It is incredibly tough to deal with these symptoms that have an impact on every area of life. I am so sorry that you are having to deal with all of this and with no solid answers. Did your rheumatologist mention anything about PsA at your most recent visit?

    I noticed in your status update that your rheumatologist has prescribed Humira. I really hope that this makes a difference for you. To answer your question, it’s not unheard of for people to go straight to a biologic (although some people do have to go through other medications first). Has there been any news from your insurance yet?

    I am sending you some very gentle virtual hugs. Please remember that we’re here if you ever need support or just a place to vent. -Catherine, Community Moderator