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  • By Nan54

    Hi, I just joined today. I have psoriasis, psoriatic arthritis, back problems & fibro. It’s always good to find a place where other understand what you are going through. I have been in a bad flare that won’t let up, so much tendonitis just moving from place to place for weeks now. I am exhausted & can’t keep up with my own housework. But the pain won’t let me move me well, so that is hard!! Glad to be here & read others ideas. It will be good to feel not so alone!!

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  • By CathyD Moderator

    Hi Nan54,

    Welcome to the community!! It’s great to have you here πŸ™‚

    I’m so sorry to read that you’re flaring at the moment, I hope things calm down for you soon. I had a terrible time with tendonitis a few years ago so I really feel for you. Are you working with a rheumatologist currently?

    Thanks so much for being here and sharing with us. Sending gentle hugs your way!!

    – CathyD

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  • By Nan54

    Thanks Cathy, I am working with a Derm., as I was seeing him for my psoriasis. He is the one who put me on Humira, Rheum. wanted nothing to do with that. Then the joint pain etc. started coming on more. Think it had been longer than we realized as I have had fibro for 25 years. Now on a prednisone taper for six weeks & they want to change me from the Humira to Stelara if approved. We will see how it goes. Thanks for letting me share. Hugs back.

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    • By CathyD Moderator

      I’m sorry you’ve been suffering for so long. Goodness me, fibromyalgia and psoriatic arthritis, as if one chronic illness wasn’t enough to deal with ! Best of luck with the Stelara, I really hope it brings you some relief. Please keep us updated with how you go, and know that you’re welcome to share here anytime πŸ™‚

      – CathyD

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  • By KunyaB

    Hi Nan54!

    I just joined today…I am so glad that we are both here! I have been feeling depressed and isolated so much lately but I have finally come to a point of acceptance with my disease. Time to move forward!

    I was just diagnosed with PsA about 14 months ago and it has been a long and painful road so far. I’ve had psoriasis for almost 25 years but have been having PsA type symptoms since 2010. Glad to finally have a diagnosis so I can move forward. I have been dealing with an on/off flare up for 2 months now that has stopped me in my tracks so I understand right where you are.

    I am on a low dose of mtx right now (reduced for liver issues) and a blast of prednisone myself. I see the Rheum on Thurs to change meds so I am hoping things get better soon. I hope the medication change helps you to get over the flare-up too! Take care of YOU and let us know how things go.

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    • By Margot T Keymaster

      KunyaB,

      Welcome! Thank you for sharing your story with us. I am sorry to hear about your painful past 14 months and your on/off flare. Wishing you the best for Thursday!

      Take care,
      Margot, Psoriatic-Arthritis.com Team

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  • By Nan54

    Thanks all, had my first Stelara inject. I am still having an awful time, esp. knees & hands. I get my second inject. on June 9th, not sure how this will work. I don’t have any pres.pain meds so I take ibuprofen & I’m not sure how much longer I can keep this up. KunyaB, I sure hope you are doing better, it’s hard not to feel depressed & isolated with this disease. I am glad we are here & can get info & hear from others with their ideas etc. Have a good day all.

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  • By KunyaB

    Hi Nan54. I do hope that the secondary injection helps you!! I just started Enbrel and had my 3rd injection today. I don’t notice much improvement yet but I had been on prednisone since May 4th. I am so hoping that this is the winner! I do have to say that things were so much better on the steroids and for the first time in a long while I was able to go for a “long” walk outside. I think it was a little over 3 miles, although I did overdo it and was stuck on the couch the whole next day. Baby steps for us all.

    I should also add that I got my medical marijuana card and have started using CBD to help with the pain and inflammation. I am at low doses to get used to it…but I do find it helpful when the pain is out of hand.

    Let us know how things go on the Stelara!

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  • By Rebecca Keymaster

    Welcome KunyaB!

    Baby steps – perfect way to say it. And thanks for sharing about the CBD – I know a lot of community members have questions about it or are interested in the topic!

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  • By EINNA

    Hi Everyone. I just happened upon an article from this site & it described me to a tee (sleeping beauty syndrome). I was an active member of a support group long ago & loved it. Why it’s taken me so long to join another, I have no idea. But here I am, with every symptom listed on the profile. I am currently off my biologic because I had surgery. And because I had surgery I couldn’t take ibuprofen, ugh. I now need topical chemo for recurrent skin cancer so I must remain off my medications until the beginning of the new year. I’m not sure how I’m going to cope. So I am so happy to have found you. I am anxious to hear about others who have been in this dilemma. I am so very glad to be here.

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    • By Rebecca Keymaster

      Hello Einna and welcome!

      So glad you found us!!! Wow, it sounds like you’ve really been through it this year….I do know that many in the group use more complementary and alternative methods of treating their PsA, perhaps that might help hopefully a little for you since you can’t do the biologic?

      And we are very glad you are here, too πŸ™‚ Adding you as friend I hope that’s ok!

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  • By cchappo

    Welcome Einna! I am fairly new also. Finding so many others with the same issues, has helped my sanity a bit. I didn’t realize how many of my issues were due to PsA! I have learned a lot on this site.
    Gentle hugs!

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  • By cchappo

    Living with it day by day. Trying not to let it get me down. Never a moment without some pain…the “seasoning” to my life…lol!
    I just had a bad “flare” that lasted 3 weeks…never had that happen before! My body is still in recovery mode. I feel weak and drained. I am assuming this is the normal process.
    Thanks for your concern.

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    • By Rebecca Keymaster

      Wow, three weeks! I can’t begin to imagine…when you’re in recovery mode do you do any binge tv/movie watching?

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    • By EINNA

      I feel your pain. The fatigue, brain fog & my 2 day “coma” syndrome are often worse than dealing with the day to day pain of this disease. I am so pleased to have found this site as I was on a wonderful support site many years ago where I made a lot great friends. And we’re still friends after 20+ years. I’ve been going down hill for a few years now & this site came along just when I needed it. It feels good to be back to sharing my symptoms, my concern for others & enjoying the knowledge that someone out there understands. There is one thing about a support group that is just about the best thing of all. And that is you no longer think you’re crazy.

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  • By Robin

    Hi everyone and Happy New Year! I’m Robin from Georgia. I found this site through articles on FB and thought I would check in. I have been dealing with PsA for 6 years officially (diagnosed) and at least a decade more prior to being diagnosed. I’m glad to know there’s a place I can vent and others will understand. Looking forward to reading and learning more in the near future.

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