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Anyone else experienced one swollen lower limb?

  • By AJVyvs

    Hi all – am new here so forgive me if I’m not following etiquette.
    Having been diagnosed with PsA in just my left knee I had a radio synovectomy – doesn’t seem to have worked. I broke my elbow in an accident and now that’s swelling up to and I’ve lost full movement. After a short flight two months ago my ankles swelled up, one went down the other is still swollen and has joint pain. Now the whole of my lower leg (knee to ankle) is swollen and gets very painful all over – kind of like cramp.
    I’m taking 1000mg to 1500mg naproxen plus paracetamol and codeine at night for the pain. Pain varies from manageable and stiff to excruciating. I’ve done lots of internet trawling but can’t find any info on swelling of limbs other than in joints.
    My next hospital appointment is end of Jan – just wondering if this is normal or I should make a fuss and contact the hospital?
    Anyone out there had this or heard of it???
    Thank you 😀

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  • By CathyD Moderator

    Welcome to the community, @ajvyvs!

    Gosh, what you are dealing with sounds incredibly painful and uncomfortable. I’m sorry to read that you’ve been dealing with this swelling and pain for so long.

    We’re not medical professionals here (so are unable to offer medical advice) and would encourage you to reach out to your doctor regarding this. I think contacting the hospital would be a good idea, even if it’s just to get some peace of mind. Hopefully anyone with personal experience with this will stop by and share their story with you.

    I do hope you are able to find some relief from this as soon as possible. Keep us updated!

    -Catherine, Community Moderator

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  • By AJVyvs

    Thank you Cathy. I contacted my GP yesterday and she’s prescribed some steroids so we’ll see!
    It was just the swelling outside of the joints that I’d never heard of and wondered if anyone else had had this!
    Merry Christmas 🌲

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    • By CathyD Moderator

      Ah I do hope that the steroids help, @ajvyvs. It sounds awfully uncomfortable. Fingers crossed that they kick in soon!!

      Happy Christmas to you and your family 🙂

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  • By bumster Hi I'm new 12/2018

    Hi I have had my left knee flare up to the point where I could not step on floor to walk to the point I wanted to cut off matter of speaking but it only lasted 3 days then got back down along with ankles sorry you have to go thru that but I do understand hope it gets better happy new year

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  • By AJVyvs

    Thank you for your replies I’ve not been online for a couple of weeks
    The steroids worked a charm and I was pain free and the swelling went down in all my joints for two weeks. Even better I got my energy back and I felt human again for the first time in 3 years. What a joy. Unfortunately my GP would only give me 10 days supply.
    I’m back in pain swelling and fatigue land now but seeing a rheumatologist on Thursday so cross fingers he can come up with a plan!
    Thanks again for the support!

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    • By CathyD Moderator

      How did your appointment go yesterday, @ajvyvs? I just got back from a rheumatology appointment myself!

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  • By AJVyvs

    Well all interesting and hopefully positive!
    The swollen calf and shin was because I had ruptured a bakers cyst. So that explains that mystery!
    As I am now polyarthritic my new chap … who is a leading research professor and president of the PsA association and has published over 300 papers … think I might have fallen on my feet here being lucky enough to have him… has started me on sulfalazine (along with steroids to start with). Unfortunately due to funding in the UK the NHS is not allowed to prescribe biologics before DMARDs are tried first unless you fit certain criteria. So we will know in 3 months whether the sulfalazine is controlling everything or whether we need a different strategy.
    I think the rheumatologist is disappointed he couldn’t try something more cutting edge on me straight away but luckily for me I have no signs of damage to my spine and I’m not allergic to anything so I don’t tick any boxes!!!
    I’m feeling much more positive and hopefully in a day or two with the steroids I will be sleeping again… that is such a big thing for me!
    I hope your visit went as well as mine. Crossed fingers for you and thank you for asking x

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    • By CathyD Moderator

      Oh my gosh, @ajvyvs, no wonder you were in so much pain ! So glad you got to see your rheumy and find out what’s been going on. Hopefully the steroids do kick in again very soon. Sleep is SO important.

      Your rheumatologist sounds amazing! I am actually in the UK too, now I’m wondering whether he practices near me… Don’t tell my rheumatologist I said that, I do love him haha. I hope that the sulfasalazine works well for you. I am taking methotrexate and it does seem to be helping with my PsA symptoms. My psoriasis is looking a bit angry though so we’re going to increase the mtx a little… so that will be interesting (and hopefully uneventful !).

      Thanks so much for updating us. I’m happy to hear that you’re feeling more positive 🙂 <3

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    • By AJVyvs

      I see him in Bradford – he’s a star!
      I’m also super lucky (so far) not to have any psoriasis so I do sympathise with you.. an extra thing to deal with.
      Best of luck and I hope the increase in meds’ works well and smoothly!!!
      Thanks for your support

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