In a dark & painful place

Hello All,
I am new to the diagnosis of PsA but am a veteran of psoriasis. My psoriasis started at the age of 11 yrs old covering my body from the neck down, I did have a very brief remission at age 18 but the psoriasis resurfaced on my elbows, knees, ankles, feet, nails, back, and scalp. I am 48 yrs old and have had 9 back surgeries due to a work injury, over the past couple years I have dealt with dizziness, shortness of breath & passing out issues. My PM sent me to my cardiologist to make sure it wasn’t my heart (I have a Mitral Valve Prolapse) All was good with the heart so back to my Primary I went, after 2 yrs of being passed back & forth with no answers, I gave up.
One morning in April of 2017 I was in severe pain & couldn’t move, I thought I might have overdone it but things continued to get worse after a few days of rest. Later that week I went to my Pain Management appointment in severe pain & barely moving. He did his exam of my back & asked why my psoriasis was so bad on my back?
That is when the suggestion of PsA came to light! I started doing some research & lots of reading & low & behold it was me to a tee. I then proceeded to try & get an appointment with a Rheumatologist, which took me 5 months to get into. Finally on Feb.5, 2018 I was diagnosed with Psoriatic Arthritis & given the starter pack of Otezla! For the past 11 days I have had vomiting, nausea, runny nose & major headaches, had an appointment with my PM today to find out that my Otezla script was denied & my blood work came back positive for the HLA-B27 Antigen. To top it off I called to get my SI Joint MRI done & the idiot on the other end of the phone kept insisting I need an Arthrogram & not an MRI so I needed a new script! Does anyone just do the job they were hired for? So I have yet to get my MRI appointment. So my entire day has been full of stress, my body is literally killing me & the fight has just began! I have been through allot in my 48 years of life but dealing with this has taken a toll on my physical & mental wellbeing 🙁

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Comments

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  • VickiN moderator
    11 months ago

    @Cindie, holey tamole! You have been through the wringer just in the last 2 weeks alone! I’m sorry that you are currently fighting with your healthcare staff (on top of trying to fight with your immune system. Ugh!). Hopefully you can get in for that MRI soon and get back on the path toward relief. Hang in there, you’ve still got lots of treatment options available to you. You are not alone here and this community is filled with so many great people who can give feedback and support. Big giant hugs to you as you go through all of this.
    -Victoria, Community Moderator

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