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Does anyone have pain on humira? What works for you?

Hi everyone. I started humira awhile back. It is helping my skin but I am still having pain in my ankles, hands, hips, knees and feet.

I would love to know thoughts on this and I am open for suggestions.

  1. I've been taking Humira for the last four months and since before I started I also have been taking Prednisone and as long I'm taking the Prednisone the pain is almost to a minimum. About half through the Humira regimen I stopped taking Prednisone and after three days the pain started again, my doctor resumed the prednisone but at half the dose I was before, it has been almost a week since I stopped the prednisone again and some of the pain on my fingers, hip, ankles, shoulders, knees and toes has come back, not as bad as it did before but gradually has increased, next week I going take my next dose if the pain persist or increases I'll have to let the doctor know that is not working. One thing I found and I'm not sure if is related is that I the muscle behind my knee looks swollen, the doctor took some ultrasound images and it didn't find any tumor, it doesn't hurt but now I found another in my armpit and it has left me concerned.
    If the medication isn't working, you should let your doctor know, but keep in mind that it takes months before the benefits can be seen.

    1. I can't take prednisone because of having diabetes. I wish I could though. Seems promising for some people.

    2. prednisone does help but it is just a temporary fix. What you may not know is that your Dr will have to wean you off of the prednisone slowly. You cannot just stop taking it.

  2. Yes I do have muscle pain as well but is like someone is turning the switch on and off at random in my arms and legs, is not too bad but annoying, is the constant pain in my fingers that is concerning.

    1. Most of the time mine is a constant pain. It is not like that everyday but when it kicks in I hurt all over the place. My Dr. will ask "Are you having a flare?" How am I supposed to know, I always hurt so it is hard to tell the difference for me.

  3. I'm in constant pain. There is absolutely no time that I have no pain.

    1. Hi kerry, me again. Lol. Gosh you're symptoms sound just like mine.
      Sounds to me like you may need to find a different medication or increase frequency of humira.
      My rheumatologist has suggested a DMARD in addition to the TNF (humira, now cimzia) but I'm reluctant for my own reasons. Might be worth asking your doctor. Also a stronger NSAID may help too. Diclofenac, celebrex and meloxicam are good choices

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