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My Echo

My Echo

I grew up in a small rural town in the country where there was not much to do as a youngster. We lived in this big old country house. I recall often playing in rooms in this old house with my sisters. We had this one room in the house that was empty. There were days I would I stand in the center of the floor and yell my name and it would echo back to me. It was cool how the echo of my name would bounce off the wall into the very atmosphere where I would be standing. It was fun – I thought – to hear it. Reminiscing back, I sort of look at it the way as I view myself with psoriasis and psoriatic arthritis.

The echo no one hears

There has been a lot of echoing back to me as patient with this disease. I have had to have six biopsies to prove I have psoriasis. Doctors used to believe that African Americans didn’t get psoriasis. It took 25 years for me to get the proper diagnosis of having psoriatic arthritis. I have lost count of how many doctors I told that was what I had. It was just an echo; nobody heard me.

Much to my surprise now, my echo reminds me every day of what I have to deal with. When I get out of bed and get dressed for work, my echo is saying you are in pain, take it slow and don’t rush.

When I get in my car to drive, my echo echoes back, easy on the steering wheels, you know how much pain is in your shoulders. When I prepare to climb the stairs, my echo yells, be careful, you know how bad your knees and legs hurt.  When I use my computer, my echo echoes back, go take a break, your fingers are swelling.

You get my point.

Every single day, the little echoes of psoriatic arthritis and psoriasis reminds me of my disease. It reminds me that I have a disease and I have to take it easy in everything I do. Sometimes in life we need these friendly reminders to echo in that small voice that we need to take care of ourselves. We can never forget.

The echo for others

The only difference between the echo when I was a child and now is that it is no game. It is real life. Thanks for the echo I am privileged to hear in my journey in this life. I am the echo for many patients with psoriatic arthritis and psoriasis to let them know I hear your concerns and I am here and care about you.

When I compare the differences of then and now I come to the conclusion that I matter and I want to make a difference. I want to continue to go to Town Hall meetings to speak, I want to continue to speak a FDA meetings or go to Capitol Hill. I want to continue to write articles and blog.  I want to make a difference.

My echo really sounds the same. I am able to adjust my life to anything that is thrown at me. With everything in reference to echoing. I know the greatest echo I hear today is unequivocally the same echo I heard in that empty room as I would echo my name. It is who I am, and who I’ve become. This has and will never change. My psoriasis and psoriatic arthritis is only a condition and it doesn’t define who I am. I will never stop fighting for us.

Over the years I have been an active advocate for psoriasis and psoriatic arthritis, speaking up and out about this disease.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.