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Woman sitting on the edge of her bed looking distressed

Mornings with Psoriatic Arthritis

Alright y’all, let’s talk about mornings. How long it takes me to get “moving” is often used by my doctor as a means of evaluating the efficacy of my medications. Does it take 45 minutes or 2 hours?

With the combination of pain and stiffness, the morning is when I struggle the most to put a smile on my face. I used to think that it was the evenings when I was the most exhausted, but after a pretty rough run of mornings, I’m now officially convinced that mornings with psoriatic arthritis are the worst!

The morning struggle with psoriatic arthritis

Yes, I’ve developed strategies to try and get myself out of bed in the morning. Even waking up with a grateful heart and a semi-functioning body. But that simply isn’t possible every single day. Try as we might, there are just some days when our bodies just don’t want to move, no matter what type of bribery or cajoling we try to do.

Morning pain

When I wake up in the morning, it is difficult to guess where my mind will notify me of pain first. Oh, will it be my back? My hands? My feet? Oh, let’s just go crazy and throw my knees in the mix today, what the heck.

Surprise! It’s actually everywhere! Some mornings, the pain with every step is blinding, as in literally, seeing white spots, blinding.

The stiffness of psoriatic arthritis

Morning stiffness is so very difficult to describe. If I were to try and explain it, I’d start with the idea of a rubber band. However, It isn’t as simple as trying to stretch a vegetable rubber band to fit around, oh, say an elephant. Nope, that would be too easy.

The stiffness is more like when you locate a long lost, years-old, ancient, rubber band in the back of a drawer. Then you take that brittle, poor excuse for a rubber band and try and stretch it around all your medicine bottles without breaking it. That’s the stiffness. That is what my body feels like from the moment I open my eyes in the morning.

Fighting morning fatigue

No one will understand (and even I struggle understanding it myself) how a person can sleep for 8 or more hours and still feel the ever-present level of fatigue. It is the fatigue that feels like a 1,000-pound weight is pressing down on my body making it a monumental task to simply lift my arm.

But in the morning, when I’m lying in my bed talking myself into sitting up is when the mental effects of the ever-present fatigue are at the worst. Because there is no “logical” excuse or reason for me to be tired. At least at the end of the long days, fatigue can be “understandable.”

It’s the morning brain fog

Yep. Even when I just open my eyes I can’t really think straight. There is no such thing as waking up “refreshed” and “ready to take on the day” in the mornings with psoriatic arthritis. Brain fog is bad. Yes. But morning brain fog is a whole other beast. Am I the only one to notice this? Am I the only one who can categorize their brain fog?

Let’s hear about your mornings with psoriatic arthritis

So what about you? What are your mornings with psoriatic arthritis like? How long does it take you to convince your body to get out of bed and moving? Is there a part that is worse for you- the pain, stiffness, fatigue, or brain fog?

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Psoriatic-Arthritis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • LisaMN
    2 weeks ago

    I can completely relate, I haven’t woken up refreshed in 30+ yrs. For a long time I thought I just stayed up a bit too late or it was kids or whatever. Then my kids were grown, the house was quiet and I could sleep as long as I wanted or take naps, but nope, never felt rested. And that was providing I could even sleep at all, for a decade I had insomnia, getting 2-4 hrs a night at most. The insomnia is managed (mostly) without rx or otc sleep aids but still not rested after 8 hrs.

    If I sleep longer than that I wake up even achier than usual and still no more rested.

    I describe the body stiffness as if I were a rusting hinge, it can move, but not with smooth fluid ease like a shiney new hinge. It’s slow movement with catches, it requires degrees of effort or force, tiny increments until it reaches its limit. When the joints are a bit warmed and a little more lubricated, they move better. Same as if one had oiled the hinge or squirt a bit of WD40 in the grooves. It moves, but the rust it still there.

    I’ve never been a morning person, I always take a while to wake up & don’t want to talk much. Some mornings I feel the fog and stand there knowing I have something to do, but the info is only coming in in pieces. I also experience it at other times of the day too and every now and then feel it the whole day. I’ll try to read and the words are just not sticking and I’ll find myself re-reading more than once. On those days I just try later or stop trying to force it.

  • NanaBetty
    1 month ago

    You don’t mention the battle with needing to pee versus the pain of getting up and moving to the bathroom. The pain makes it hard to get up, then take a step, then lean and bend to pull down pj’s and sit (not fall) on toilet. Not to mention that pain makes you need to pee even more!

  • salmac
    1 month ago

    Although I am stiff in the mornings, afternoons and evenings are my hardest times. Brain fog and fatigue are 24/7. I cannot remember the last time I woke up feeling refreshed and rested. Maybe years ago……..

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