It’s My Birthday
I have had psoriatic arthritis for 25 years, but didn’t get officially diagnosed with it until 10 years ago. This disease can cause inflammation in the joints. It can affect a single joint or many throughout the body. Stiffness, swelling, and joint pain are some symptoms of psoriatic arthritis. Inflammation in the knees or shoulders can limit range of motion, making it hard to move freely. As I’ve gotten older, all these symptoms have gotten worse, but I find that I still want to celebrate each birthday with a bang. Having this chronic illness has made me appreciate life to the fullest. I will be 59 in February, and I have been planning for weeks for my big day.
Planning a birthday party
If you have ever planned any type of party, you know it takes a lot of work and running around. You have to have the perfect food, a great venue, and of course the appropriate guest list. I just know I can pull this off without a hitch. I just can’t wait for my big day!!
When you’re planning any event, you don’t realize how much goes into planning. I found that just going to the bakery or to the store has become a chore. The arthritis in my shoulders and legs are in pain. I have had to take naps in between going back and forth to different stores. I am totally drained and can’t move another step.
By invitation only
My party is by invitation only and there would be no exceptions. There is a reason for this. I need people around who will understand on the day of the event why I can’t get out of bed, if that is ever the case or why I am in so much pain. I don’t need you to tell me how much weight I’ve gained, or that I don’t look sick. Sometimes people don’t understand that some of the medications I used cause me to put on weight. Negative people bring on more stress and more pain than I want to deal with or explain on this day.
I have had negative people in my life who seem to wreak havoc on my autoimmune system which has caused my psoriasis and psoriatic arthritis to be out of control. The body and what affects it is all linked together. The best dermatologist can’t control what goes on in your head.
Negative people have caused my skin to itch like crazy, I feel things crawling on me and just feel uncomfortable. I know that planning this party will bring some stressful moments and things can go wrong. It usually takes a few days for my body to get back to normal.
Being grateful for every birthday
Over the past years as I look back on my life; I like the person I see in the mirror. I have developed a strong mental strength that has allowed me to motivate myself and be a motivator to others. I have been at the lowest point in my life, but I have managed to come out on top.
I am grateful for every birthday and the opportunity I have been given to share the good and the bad with others. I will never give up hope that one day we will find a cure for this disease.
My present biologic has stop working; starting a new one soon. I am 50% covered in psoriasis and have to use a cane to get around. So for now, they one thing I can say is, happy birthday to me and can’t wait to be 60 next year.
Over the years I have been an active advocate for psoriasis and psoriatic arthritis, speaking up and out about this disease.
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